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I was finally after 2 years of being ill, and being told, I was depressed, lazy,didn’t like. School etc I was diagnosed with hypoparathyroidism at age 11.. during those first 2 years every organ in my body started to shut down. I have hypothermia, yellow jaundice, my hair fell out, lock jaw, became partially deaf and blind, couldn’t talk fluently, couldn’t remember things, slept 20 plus hours a day until eventually over night I became covered in hair and was rushed to hospital... the specialist took one look at me and asked if I had ever wanted to commit suicide or throw myself out of a window! He then said how lucky I was as another week and I wouldn’t have made it as my body would have completely shut down.... in hospital I had many many doctors come and see me and groups of training doctors..I had photos taken completely stripped down and was told it was so rare that I would be in all the texts books... once on thyroxine i gradually came back to life but unfortunately a year later I got glandular fever which knocked me right back down again.. it was a long recovery and I virtually missed all of secondary school... my body recovered and now at 53 I’m fine. I never put weight on until I hit menopause and now that I am through that I am having trouble again... I can no longer stand or walk for more then about 10-15 minutes, my hips hurt and my ankle is killing me...doctors have said my ankle is caused by sciatica and I have slight arthritis in my hips, but I don’t accept these answers. I know my body and know whatever this is, it is something to do with my auto immune system.  First I thought it was rheumatoid arthritis as I can’t stand for first 2 hours in the morning. But all tests came back borderline... then I friend told me she had same symptoms and was told to half her thyroxine dose as it counteracts with another chemical...does anyone know anything about this as at present to go out I have to go in a wheelchair and it is really getting me down? 

I was diagnosed with Hashimoto in 2012. The right are was the primary site of my goiter. Two biopsies between 2012-2014 showed that side as benign. However, an ultrasound and biopsy in 2014 showed at least 6 calcified nodules that were inconclusive. Surgery was recommended in early 2015. A more severe illness and put this on the back burner. I finally had a total thyroidectomy in April of this year. Within my thyroid was a 6.3cm stage 3 palpillary carcinoma. There was no evidence that cancer had moved to other parts of my body. However, I opted for RAI. I'm on my last days of LiD and received a low dose of RAI (body scans of iodine uptake only showed a small amount of thyroid tissue in my neck). The stopping of levothyroxine and cytomel has created an extremely miserable experience. I am very hypothyroid with TSH is over 100. I have gained more than 15 lbs in 2 weeks, even on LiD. I am in constant pain in my legs and back, and I feel swollen all over. Fortunately, I can begin levothyroxine at higher dude in 2 days with a 3-day cytomel course. If I ever have to go through RAI again, I'm going to insist on thyrogen injections instead of weeks of hypothyroidism. I laid all this out with such a long post is because when we are hit with do many rounds of diagnosis, it's hard to remember to ask all the way or even knowing what to ask. Sites like these allow us to learn from others. For which I thank you greatly. If anyone would like tips for non/low iodine food ideas, feel free to ask me.

Melissa

I have hosimoto.  I am currently on medication. I have developed a large knot or lump on the back of my neck. I was told it could  be related to my Hosimoto. Is that a possiblity?

I've been diagnosed with Hashi's a little over a week ago and one of the main symptoms I have is air hunger and chest pressure. Since this initially occured during the hay fever season, my pulmologist thought I have postnasal drip which caused breathing issues so she kept me on allergy medicine even though they obviously did not work. Reading other people's stories, I think I was lucky to have found an immunologist that figured out what was wrong with me right away because she asked me to do thyroid blood panel tests after my first visit. I started taking levo over a week ago and my hormones are out of wack but hopefully things will stabilize in the next period. I'm a male so I was surprised to hear that this disorder mostly affects women but the first time I heard about it was when my male colleague was also diagnosed maybe couple of weeks before I have. My female coworker is also hypo and she had thyroidectomy last year. We are all in our late 30's.

Have you been evaluated for polycystic ovary disease?  Some of your symptoms might be from that & not from your thyroid.  Most women don't know they have it until they try to get pregnant.